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Kentucky 2017 State Bills (Kentucky 2017 SB 59)
Any agency that collects, maintains, or stores personal information that determines or is notified of a security breach relating to personal information collected, maintained, or stored by the agency…- state bill
- bill
- bill status died
- Kentucky
- genetic privacy
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Additional Resource
Idaho 2014 State Bills (Idaho 2014 SB 1273)
If a firefighter is diagnosed with breast cancer within 5 years of employment if diagnosed before the age of 40 and if the cancer was not revealed during an initial employment medical screening…- state bill
- bill
- bill status died
- Idaho
- genetic predisposition
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Additional Resource
Arizona State Statute (Arizona: ARS §12-2801 et seq.)
This statute states that information derived from genetic testing may only be released to the person tested or others with written authorization from the person tested with some exceptions.The law…- Privacy
- Research
- statute
- genetic testing
- authorization
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Video
ELSIcon2022 Paper: Interrogating the Value of Return: Stakeholders’ Perspectives on Return of Results in Biomedical Research
ELSIcon2022 • Paper • June 1, 2022 Caitlin McMahon, Nicole Foti, Mel Jeske, William Britton, Janet Shim, and Sandra Soo-Jin Lee on behalf of Ethics of Inclusion Study Team Over the last decade…- Live
- Paper
- Return of Results
- precision medicine
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Video
ELSIcon2022 Paper: Mandating Diversity in the Context of Inequity: Re-examining the Research-Care Divide in Precision Medicine Research
ELSIcon2022 • Paper • June 1, 2022 Nicole Foti, Emily Vasquez, Caitlin McMahon, Sandra Soo-Jin Lee, and Janet Shim on behalf of Ethics of Inclusion Study Team There is a diversity deficit in…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Video
White racial framing and comfort with medical research: a critical analysis
ELSIcon2022 • Pre-recorded Paper Paige Nong - University of Michigan Melissa Creary Jodyn Plat Sharon Kardia White racial framing and comfort with medical research: a critical analysis…- Public Health
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News
Announcing a New Special Issue of the Journal of Literature and Science
We are pleased to announce the publication of a special issue of the Journal of Literature and Science, Fictions of Genetic Privacy, co-edited by Jay Clayton and Claire Sisco King. It features nine… -
Video
ELSIcon2022 Plenary: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?
ELSIcon2022 • Plenary Session • June 1, 2022 Welcome and Introduction by Mildred Cho, PhD Teresa Blankmeyer-Burke, PhD: Ableism, Audism, Ethics, and Genetics: A Just and Equitable Deaf Future?…- Live
- Plenary Session
- Stigma and discrimination
- ableism
- audism
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Video
Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies
ELSI Friday Forum • February 11, 2022 As long as genetics research has been pursued, authors within and outside of the scientific establishment have crafted narratives to make sense of…- Humanities
- Post-genomics
- Literature and genetics
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News
ELSI in Review • February 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our February 2022 set explores experiences with…