Image
The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
71 - 80 of 7195 Topics
-
Grant Abstract
Advancing Collaborative Genetic Research: Ethical and Policy Challenges
The policies of academic health centers (AHCs) for human subjects protection in the collection, storage, use, and sharing of biospecimens and associated data (i.e., biobanking) will have significant…- Area
- Attitude
- authority
- Award
- base
-
Research Tool
Genomic Data Governance Policy Statements
In the original study, Briscoe and colleagues asked participants how each of twelve, randomly ordered policies (e.g., employee code of conduct, right to request deletion of data, warrant protection… -
Publication
Data management of sensitive human proteomics data: Current practices, recommendations, and perspectives for the future
Molecular & Cellular Proteomics -
Research Tool
Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices
McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making… -
Additional Resource
NIH Resources for Researchers with Disabilities
This NIH page provides information and resources for researchers with disabilities in biomedical research supported by extramural awards. Topics include funding opportunities, relevant grant policies…- National Institutes of Health (NIH)
- accessibility
- grant applications
- funding
-
Grant Abstract
Exploring parental perspectives on pediatric genome testing, research, and data management in a multicultural population
Project Narrative Racial/ethnic disparities in genomic testing and research participation threaten to exacerbate inequities in health outcomes, particularly in pediatrics.3-7 Given that current…- Algorithms
- Adolescent
- African American
- Asian
- Consent
-
News
ELSI in Review • July 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2023 set explores digital interventions for genomics… -
Publication
Sociotechnical safeguards for genomic data privacy
Nature Reviews GeneticsWan and colleagues discuss threats to genomic data privacy, technical and legal safeguards, and ways to protect privacy and realize the benefits of data sharing. -
Grant Abstract
Building the Medical Information Commons: Participant Engagement and Policy
Many national and international public and private initiatives are forming to collect and share data on a large scale for research and clinical use. Collectively, these efforts may lead to the…- Affect
- Clinical
- clinical application
- Data
- data sharing
-
Grant Abstract
Managing Enhancement: Professional Ethical and Public Policy Issues
In their previous project, these investigators examined the ethical and legal issues raised by the prospect of using the products of human genome research for enhancement purposes. This work…- behavioral /social science research tag
- Ethics
- Family Planning
- genetic manipulation
- Genome