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This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The REDCap codebook for this study outlines each…

Kilbride and colleagues developed this data dictionary for the ENLITE Study. The ENLITE study explored public perceptions and knowledge of direct-to-consumer genetic testing. The data dictionary for…

This project developed and evaluated the efficacy of a game decision aid among pregnant women about prenatal screening in a randomized controlled study. The REDCap codebook for this study outlines…

This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The REDCap codebook for this study outlines each…

The aim of this project is to gain understanding of the implications of alternate concepts of genetic causation for theoretical work in behavior genetics and for interventions and therapies arising…

This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information…

Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…

This project brought together health communication experts with diverse areas of expertise to investigate connections among clinical encounters, family decision making conversations, and information…

Rothwell and colleagues used a willingness to pay (WTP) survey to evaluate the values individuals place on the information provided by a genetic counseling consultation providing incidental findings…

Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and…