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Publication
The Cambridge textbook of bioethics
Cambridge University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
A Community-Based Approach to Overcoming Barriers to Cascade Screening for Long QT Syndrome
While the value of identifying individuals in the population who carry `actionable' variants and screening their relatives (i.e. cascade screening) is widely acknowledged, there are numerous…- actionable mutation
- Address
- Adrenergic beta-Antagonists
- American
- Amish
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Grant Abstract
Prospective Huntington At Risk Observational Study
This project will continue and expand the Prospective Huntington At Risk Observational Study (PHAROS). PHAROS is a collaborative effort involving 43 recruitment and evaluation centers in the US and…- 8-hydroxyguanosine
- Address
- Adenine
- Adult
- Age
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Grant Abstract
Interactive CD-ROM on Cancer Genetics for Hispanics
Background: There is a growing awareness of family history as a risk factor for disease and the availability of genetic testing for inherited cancers continues to increase. However, effective,…- Behavior
- behavior test
- Breast
- Breast Cancer Genetics
- cancer genetics
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Grant Abstract
Access to Genetic Information Leveraging Innovative Technology (AGILITY) Study
PROJECT NARRATIVE More efficient ways for people to make decisions about having genetic testing are needed. We will compare use of a chatbot to standard genetic counseling in helping healthy adults…- Academy
- Address
- Adult
- American
- arm
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Grant Abstract
Genetic Education to Promote Counseling Attendance after Surgical Treatment
In 2009, 192,370 new cases of female breast cancer (BC) were diagnosed in the U.S. Of these cases, 5%- 10% were attributed to BRCA mutations. This translates to approximately 9,000 to 18,000 high-…- Anxiety
- base
- BRCA1 gene
- BRCA2 gene
- BRCA2 Mutation
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Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal genetic services have expanded at an extraordinary pace over the past 4 years with the development of fetal genome sequencing using cell-free placental DNA in maternal serum. Some…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
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Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
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Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists