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Publication
Clinical and ethical implications of genetic counselling in familial adenomatous polyposis
Revista Espanola Enfermedades DigestivasDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Palliative care and genetics: Personalized medicine for the patient and family
European Journal of Human Genetics -
Publication
NRC report finds study of human genetic diversity worthwhile
Professional Ethics ReportDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
High-level ethics committee 'needed to guide genetics policy'
NatureDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Drift of patented genetically engineered crops: Rethinking liability theories
Texas Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic testing for cancer risk: A population survey on attitudes and intention
Community GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic epidemiology and public health: Hope, hype, and future prospects
LancetDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Autism Genomics Research: Parents’ Views on Genetic Results and Autistic Representation
ELSI Friday Forum • March 11, 2022 Decades of research into the genetics of autism suggest that genes play a significant but also complex role in autism. Studies of the experience of families…- autism
- autistic representation
- autistic genomics research
- genetic diagnosis
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Grant Abstract
Families At Risk: Long-term Impact of Huntington's Presymptomatic Genetic Testing
Huntington's disease (HD) has for decades served as a model for how we think about genetic testing, and its benefits and risks for tested individuals and their families. In 1983, the gene for HD…- Adult
- Benefits and Risks
- career
- Child
- Chromosome 4
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Publication
Privacy and confidentiality of genetic information: What rules for the new science?
Annual Review of Genomics and Human GeneticsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…