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Publication
Community concerns about genetic discrimination in life insurance persist in Australia: A survey of consumers offered genetic testing
European Journal of Human Genetics -
Collection
Game of Bones: Power, Ethics, and Emerging Technology in Paleogenomics Research
The field of paleogenomics is exploding. More ancient genomes were sequenced in 2019 than in all of history. According to The Economist, in 2018, oil was the most traded global commodity. However, in…- paleogenomics
- ancient DNA
- emerging technology
- Indigenous Peoples
- archaeology
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News
The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective
The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…- Genetic Data Sharing and Management
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News
Just Funded
Our Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at info@… -
Publication
Ethical, legal, and social issues related to genetics and genomics in cancer: A scoping review and narrative synthesis
Genetics in Medicine -
Publication
Ethical, legal and social issues related to genetics and genomics in cancer: A scoping review and narrative synthesis
Genetics in Medicine -
Publication
Human cloning and stem cell research: Engaging in the political process (Legislation review: Prohibition of Human Cloning Act 2002 and the Research Involving Human Embryos Act)
Medicine and LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
ELSI Biennial Congress
For nearly three decades, the National Human Genome Research Institute (NHGRI) has supported the study of the ethical, legal and social implications (ELSI) of genetic and genomic research for…- American
- base
- Bioethics
- Biomedical Research
- Budgets
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Video
ELSIcon2022 Paper: Systematic review of recommendations on the use of race, ethnicity and ancestry in the context of genetics research
ELSIcon2022 • Paper • May 27, 2022 Madelyn Mauro, Anna Lewis The appropriate use of population descriptors in genetics and beyond has been an often visited topic. Here we present the results of a…- Language and categorization
- Ethnicity
- Use of race and ancestry in research and the clinic
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Paper: A Survey on Public Perception toward the Korean National Bio Big Data Project
ELSIcon2022 • Paper • May 27, 2022 Ilhak Lee, Hyun-Young Park, Chai Hee Youl, Jeong Eun Kim, Hannah Kim, Jihyun Yang This survey is aimed at identifying the perception of the general public and…- Motivation to participate in research
- law
- Regulation
- Governance
- Paper