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Publication
Navigating university openness in research policy inconsistent with Indigenous data sovereignty: A case analysis
Ethics & Human ResearchWick and colleagues recommend that university openness in research policies explicitly recognize tribal rights to self-determination and research sovereignty and be developed in consultation with… -
Video
ELSIcon2022 Paper: Disrupting the status quo: a new model for benefit sharing in genomics research, a case study from South Africa
ELSIcon2022 • Paper • June 2, 2022 Erin Burke, Michèle Ramsay, June Fabian Genetics researchers have earned the label “extractive biocolonialists” because they collect samples and fail to…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Grant Abstract
Religion and Genomics: Navigating Pathways and Perspectives of Patient Care
Individuals' religious beliefs and practices can be implicated and challenged as they deal with the consequences of advances in genomics. While many people can reconcile these two bodies of…- Church
- Clergy
- Clinic
- Clinical
- Collaborations
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Grant Abstract
Ethical and Social Issues in the Study of Genetics of Complex Traits
The long-term objective of this Pathway to Independence Award (K99/ROO) is to train to become an independent researcher in bioethics with a strong interdisciplinary foundation in genetics and…- Address
- Advocacy
- Attitude
- Autistic Disorder
- Award
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Publication
Mapping ethical, legal, & social implications (ELSI) of assisted reproductive technologies
Journal of Assisted Reproduction and Genetics -
Publication
Challenges faced by behavioral genetic studies: Researchers perspective from the MENA region
Current Genomics -
Grant Abstract
West African Bioethics Training Program
Accompanying the increase in research activities worldwide, particularly in developing countries where the citizens are poor, vulnerable and un-empowered, is increasing concern about the ethical…- Advisory Committees
- Africa
- African
- Area
- authority
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Publication
Experts' perspectives on human gene editing in Switzerland
Journal of Community Geneticsby Jade Berlincourt, Sumanie Gächter, Effy Vayena, & Kelly E. Ormond