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Research Tool
Codebook: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research
Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and… -
Research Tool
Data Dictionary: Assessment of the Reading of the Informed Consent Play
Rothwell and colleagues assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the controversy over specimens collected from the… -
Research Tool
Codebook: Assessment of the Reading of the Informed Consent Play
Rothwell and colleagues assessed the short-term impact of the play "Informed Consent" by Deborah Zoe Laufer (a fictionalized look at the controversy over specimens collected from the… -
Publication
Ciencia, Genética, y ¿Desinformación?: A content analysis of genetic testing coverage from US Spanish-language news media
Journal of Genetic Counselingby Daniel Chavez-Yenter, Avery Holton, Alexis S. Vega, Ginger Zamora, and Kimberly A. Kaphingst -
Publication
Exploring the use of a comic for education about expanded carrier screening among a diverse group of mothers
Journal of Communication in Healthcare -
Publication
The impact of communicating uncertainty on public responses to precision medicine research
Annals of Behavioral Medicine -
Publication
(Post)confessional mode and psychological surveillance in The Crown and Fleabag
Medical HumanitiesThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG008993