Codebook

Codebook: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research

Author(s):

Erin Rothwell

Year:

2018

Rothwell and colleagues developed a video and an app for obtaining consent about allowing newborn blood spots (NBS) to be used as biospecimen resources for biobanking. They conducted focus groups and interviews with three diverse communities to determine (a) how well the consent tools worked and (b) participant familiarity with NBS. The REDCap codebook for this study outlines each data element of the survey, including the questions administered to the participants.

University of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037

Research Population:

General public

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Codebook: Video Informed Consent Information (VICI) for Residual Newborn Specimen Research

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