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801 - 810 of 2161 Topics
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Publication
Evaluating genetic and genomic tests for heritable conditions in Australia: Lessons learnt from health technology assessments
Journal of Community Genetics -
Publication
Returning value to communities from the All of Us Research Program through innovative approaches for data use, analysis, dissemination, and research capacity building
Journal of the American Medical Informatics Association -
Publication
Research participants: Critical friends, agents for change
European Journal of Human Genetics -
Collection
Biocolonialism and Other “Western”-Centered Bioethical Failures Onto Indigenous Peoples
There are complex, historical reasons why global Indigenous peoples have largely not engaged in genetics and genomics research. For example, if we look to the 1990s and early 2000s, global Indigenous…- Indigenous
- genetic data
- genetic ancestry
- decolonization
- Indigenous data
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Grant Abstract
Penn Postdoctoral Training Program in the Ethical, Legal and Social Implications of Genetics and Genomics
Project Narrative Genomic technologies promise to transform our understandings of human biology and history and offer unprecedented power to influence the health of individuals and generations. Such…- ethical legal social implication;Genetic;Genomics;post-doctoral training;Training Programs
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Publication
We have “gifted” enough: Indigenous genomic data sovereignty in precision medicine
American Journal of Bioethics -
Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
PROJECT NARRATIVE The proposed study contributes to the long-term goal of advancing diverse participation in precision medicine research by mapping the contours of why people, especially African…- African American
- All of Us Research Program
- American
- Biological
- Biomedical Research
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Additional Resource
Inter-university Consortium for Political and Social Research (ICPSR), University of Michigan
ICPSR is an international consortium of more than 750 academic institutions and research organizations that provides leadership and training in data access, curation, and methods of analysis for the…- data archive
- Social Sciences
- interntional consurtium
- research organizations
- data access
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Video
ELSIcon2022 Paper: The Genome and the Biome: Cystic Fibrosis @ Six Feet Apart
ELSIcon2022 • Paper • May 31, 2022 Rebecca Mueller Though cystic fibrosis is often referenced as a mendelian genetic disease, it also provides insights about the human microbiome and the…- Live
- Paper
- Population screening and public health genomics
- identity