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NIH Aug 1, 2019 | R21
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
Institution: HASTINGS CENTER, INC.
FOA Number: PA-17-446
Abstract
PROJECT NARRATIVE The proposed study contributes to the long-term goal of advancing diverse participation in precision medicine research by mapping the contours of why people, especially African Americans and Latinos, decline, enroll, and stay engaged in the All of Us Research Project. This knowledge will contribute towards the alignment of recruitment and retention strategies in All of Us and similar precision medicine research projects with participants? values and expectations. By advancing diverse participation in research, this project contributes to the reduction of racial and ethnic health disparities.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
R21Project Number:
R21HG010531Start Date:
Aug 1, 2019End Date:
Jul 31, 2021PROJECT TERMS:
African American, All of Us Research Program, American, Biological, Biomedical Research, cohort, comparative, Data, Demographic Survey, design, Development, digital, Disease, Enrollment, Ensure, ethnic health disparity, Event, expectation, Federally Qualified Health Center, Forensic Medicine, Genetic, Genomics, Goals, Health, health data, health record, Hispanics, Immigration, Individual, Interview, Knowledge, Latino, Maps, Medical, Methods, Motivation, Native Americans, New York, novel strategies, Outcome, Participant, patient population, Patient Recruitments, Patients, Persons, Physiological, Policies, Population, Poverty, precision medicine, Precision Medicine Initiative, Privacy, Qualitative Methods, racial and ethnic, recruit, Recruitment Activity, Research, Research Project Grants, research study, Resources, retention rate, Review Literature, social, social media, Source, study population, Testing, Thick, Time, tool, Underrepresented Groups, United States National Institutes of Health, willingness, Work
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