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ELSI in Review • July 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2023 set explores digital interventions for genomics… -
Publication
Health disparities, systemic racism, and failures of cultural competence
American Journal of Bioethics -
Publication
Health disparities, systemic racism, and failures of cultural competence
American Journal of Bioethics -
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Publication
A practical theory-based method to improve lay decision-making for genetic testing
Genet Med -
Grant Abstract
A Multi-stakeholder Approach to the ELSI of Social and Behavioral Genomics: Investigating the Field's Downstream Implications to Mitigate Harms, Promote Benefits, and Locate Social Responsibility
PROJECT NARRATIVE Using an innovative multi-stakeholder approach, this study will contribute essential and timely data, new methods, and ethical analyses to first investigate stakeholders’ (i.e.,…- Accountability
- social marketing
- Social Policies
- Advisory Committees
- educational models
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Publication
Pregnant individuals' genetic literacy and decisional conflict about prenatal screening tests: A cross-sectional study
Journal of Genetic Counseling -
Publication
A national survey of transplant surgeons and nephrologists on implementing Apolipoprotein L1 (APOL1) genetic testing into clinical practice
Progress in Transplantation -
Grant Abstract
Consumer Perspectives on the Promise of CF Gene Therapy
In this study, the Education Development Center, Inc., in collaboration with the International Association of Cystic Fibrosis Adults (IACFA), Temple University, St. Vincent's Hospital, and…- Attitude
- behavioral /social science research tag
- Belief
- Clinical Research
- Cystic Fibrosis