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Grant Abstract
Confidentiality, Privacy & Insurance
The purpose of this project is to contribute empirical data concerning the values, beliefs, and experiences of persons (or family members of persons) with genetic conditions regarding informational…- AIDS
- Belief
- Cystic Fibrosis
- Diabetes Mellitus
- disease /disorder proneness /risk
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Video
ELSIcon2022 Listening Session: ELSI and the All of Us Research Program
ELSIcon2022 • Networking Session • May 31, 2022 Katherine Blizinsky, Subhashini Chandrasekharan This listening session is intended to engage ELSI researchers and stakeholders to: i)…- Live
- Networking Session
- All of Us Research Program
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Publication
A scoping review of genetics and genomics research ethics policies and guidelines for Africa
BMC Medical Ethics -
Publication
Ethical management of hereditary cancer information
Acta OncologicaDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Genomics, Biometrics and Identity
As concerns for border security increase, policymakers are turning to genomics as a biometric for tracing individuals entering the country, identifying missing migrants' remains, processing…- Advocate
- Affect
- Attention
- authority
- base
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Publication
Fetal medicine: Prenatal diagnosis and management
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Managing familial risk in genetic testing
Genetic TestingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Personalized medicine and preventive health care: Juxtaposing health policy and clinical practice
Critical Public Health -
Publication
Rare diseases research and policy in Australia: On the journey to equitable care
Journal of Paediatrics and Child Health -
Grant Abstract
Seminar on Ethical and Policy Issues Arising from the Project to Map and Sequence the Human Genome
A semester-long series of guest speakers discussed the Human Genome Project in relation to subjects such as federal policy for biomedical research, the scientific and medical advantages of human…