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831 - 840 of 1211 Topics
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Publication
Pregnant Hispanic women's views and knowledge of prenatal genetic testing
Journal of Genetic Counseling -
Grant Abstract
Trust and Genetics Research in Diverse US Communities
This proposal seeks to build on 4 years of funded work on the ethical, legal, and social implications (ELSI) of genetic research in American Indian and Alaska Native (AI/AN) communities. In the…- Address
- Alaska Native
- Alcohol dependence
- Alcoholism
- Alcohols
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Grant Abstract
Center on American Indian and Alaska Native Genomic Research
American Indian and Alaska Native concerns about genomic research have, in a very real sense, been foundational in ethical, legal, and social implications scholarship. Sadly, many of these issues…- Alaska
- Alaska Native
- American Indians
- Arizona
- Awareness
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Publication
Access to scientific and technological knowledge: UNESCO’s past, present and future roles
Martinus NijhoffDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Data sharing and community-engaged research
ScienceSabatello and colleagues discuss areas of tension between the community-engaged research and data sharing movements including incentives and benefit sharing; group harm and power structures; and… -
Publication
Genetic counseling gone awry: Miscommunication between prenatal genetic service providers and Mexican origin clients
Social Science and Medicine -
Publication
Considering “respect for sovereignty” beyond the Belmont Report and the common rule: Ethical and legal implications for American Indian and Alaska native peoples
American Journal of Bioethics -
Publication
Genomics education for the public: Perspectives of genomic researchers and ELSI advisors
Genetic testing and molecular biomarkers -
Video
Indigenizing Genomics and Advancing Indigenous Data Sovereignty
The ELSI Friday Forum was held on Friday, February 10, 2023. Indigenous peoples have embodied genetic understanding within Indigenous knowledge systems long before encountering settler-science…- Indigenous genomics
- data sovereignty