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Video
Constructing Strategies to Address and Assess Equity, Outreach, and Impact
The second session highlights strategies and solutions to some of the issues raised in Session 1. There is a specific focus on community engaged research and implementation strategies that target…- community based research
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Publication
Government and public policy in the United States: What should be the role of state and federal government in regulating genetic data?
Suffolk University Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Research Tool
Codebook: Newborn Screening Residuals
This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The REDCap codebook for this study outlines each… -
Publication
Wanted, but elusive: Clear solutions for addressing potential group harm in data-centric research
American Journal of Bioethics -
Publication
Fixing innovation policy: A structural perspective
George Washington Law ReviewDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Patients' perspectives related to ethical issues and risks in precision medicine: A systematic review
Frontiers in Medicine -
Publication
Broad consent for research With biological samples: Workshop conclusions
Am J BioethicsDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
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Video
ELSIcon2022 Late-Breaking: Is a gene running in your family? Perceptions of responsibility to inform relatives about genetic cancer predisposition and risk management: an in-depth qualitative Swiss-Korean comparative analysis
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Monica Aceti This study examines the different meanings of responsibility to disclose to family about genetic…- Live
- Networking Session
- Late-breaking Abstracts
- Disclosure of genetic risk information to relatives
- Genetic Counseling