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Trainee Connect Mentor - Mentee Relationship Continues
The CERA TraineeHub program supports the research and career goals of trainees and early career scholars of all disciplines with an interest in the ethical, legal, and social implications of genetics… -
Collection
Establishing Affirming Genetic Counseling Services for Transgender, Gender-Expansive, and Intersex Patients
Sex and gender diversity have long existed across cultures throughout history. Despite this, the harmful perpetuation of the gender and sex binary persists within all specialties of medicine,…- TGDI
- gender affirming care
- intersex
- transgender
- gender-diverse
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Collection
Ethical Issues Related to Research Uses of Residual Dried Bloodspots from Newborn Screening
Newborn screening for metabolic and genetic disease is arguably one of the greatest public health interventions—notwithstanding some ethical challenges and opportunities for improvement—because it…- residual specimen
- Newborn screening
- genetic disease
- public attitudes
- Consent
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Grant Abstract
Ownership Interests in Research Outputs of Genomic Citizen Science Initiatives
Ms. Christi Guerrini is research faculty in the Center for Medical Ethics and Health Policy at Baylor College of Medicine (BCM). BCM is a premier academic health science center known for excellence…- Academia
- Affect
- Area
- Biomedical Research
- Books
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News
ELSI in Review • December 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2024 set explores ethical aspects of human…- Noninvasive prenatal testing
- pharmacogenomics
- Genetic Testing
- precision medicine
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News
ELSI Abroad: Spotlight on Japan
For this sixth installment of ELSI Abroad, CERA spoke with Jusaku Minari, Ph.D., Associate Professor of the Uehiro Research Division for iPS Cell Ethics in the Center for iPS Cell Research and… -
News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
News
Creating and Sharing Animated Videos to Communicate ELSI Concepts: An Interview with Mildred Cho
In August, Mildred Cho, PhD, a long-time member of the ELSI scholarly community, and Professor in the Department of Pediatrics, Division of Medical Genetics and in the Department of Medicine at…- research tools
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News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As… -
News
ELSI Research Methods Spotlight: Social Network Analysis
Laura M. Koehly, Ph.D., Chief & Senior Investigator at the Social and Behavioral Research Branch (SBRB) of the National Human Genome Research Institute (NHGRI), develops and applies social…