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Publication
The Door Opens Slightly: Recent European Union regulations on genetically modified products and the ongoing United States-European Union GM product dispute
Georgetown International Environmental Law ReviewDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Straightening your heir: On the constitutionality of regulating the use of preimplantation technologies to select preembryos or modify the genetic profile thereof based on expected sexual orientation
Rutgers Computer and Technology Law JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Successful hematopoietic stem cell transplantation for Fanconi anemia from an unaffected HLA-genotype-identical sibling selected using preimplantation genetic diagnosis
BloodDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Establishing the role of pre-implantation genetic diagnosis with human leucocyte antigen typing: What place do "saviour siblings" have in paediatric transplantation?
Archives of Disease in ChildhoodDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The role of current affect, anticipated affect and spontaneous self-affirmation in decisions to receive self-threatening genetic risk information
Cogn EmotClinical Sequencing Evidence-Generating Research (CSER) Consortium. -
Publication
Science is really needed -- that's all I know': Informed consent and the non-verbal practices of collecting blood for genetic research in northern Sweden
New Genetics and SocietyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Understanding All of Us Enrollees and Decliners ™ Motivations to Enhance Recruitment and Retention: FQHC's barriers to caring for patients with clinically actionable genetic research results
PROJECT NARRATIVE Our overall objective is to make progress toward mitigating the challenges that un/underinsured participants in the All of Us Research Program may face when they access care for…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Publication
Italian public's views on sharing genetic information and medical information: Findings from the 'Your DNA, Your Say' study
Wellcome Open Research -
Publication
Genetic testing for early-onset torsion dystonia (dyt1): Introduction of a simple screening method, experiences from testing of a large patient cohort, and ethical aspects
Genetic TestingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Non-uptake of predictive genetic testing for BRCA1/2 among relatives of known carriers: Attributes, cancer worry, and barriers to testing in a multicenter clinical cohort
Genetic TestingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…