NIH Aug 1, 2019 | R21

Understanding All of Us Enrollees and Decliners ™ Motivations to Enhance Recruitment and Retention: FQHC's barriers to caring for patients with clinically actionable genetic research results

Principal Investigator(s): CRANE, JOHANNA , NEUHAUS, CAROLYN PLUNKETT (contact);

Institution: HASTINGS CENTER, INC.

FOA Number: PA-18-591

Abstract

PROJECT NARRATIVE Our overall objective is to make progress toward mitigating the challenges that un/underinsured participants in the All of Us Research Program may face when they access care for medically actionable genetic research results. Un/underinsured patients are typically left of out advances in genomics because they cannot afford to follow-up on research findings in the clinical setting, and face myriad barriers to accessing specialized care for lifelong disorders (e.g. barriers with regard to transportation, childcare, obtaining time off from work, and following specialized diets). Our long-term goal is the reduction in racial, ethnic, and class health disparities by ensuring that all people, including those that are un/underinsured, benefit from advances in genomics.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R21

Project Number:
R21HG010531

Start Date:
Aug 1, 2019

End Date:
Jul 31, 2021

PROJECT TERMS:

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