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Video
Platform Heals? Ethical Issues in Direct-to-consumer Telepharmacies
Ben Wills - The Hastings Center ELSIconversations - February 26, 2021 Healthcare is in the middle of a dramatic revolution. Hims, Hers, Roman, Nurx, LemonAid, and The Pill Club are start-ups…- direct to consumer marketing
- Direct to Consumer Genetic Testing
- telemedicine
- Healthcare
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Video
ELSIcon2022 Paper: Public Engagement in Governance of Human Genome Editing in the Post-He Jiankui Era
ELSIcon2022 • Paper • June 3, 2022 John Conley, Eric Juengst, Rebecca Walker, Jean Cadigan, Gail Henderson When scientists meeting at Asilomar in 1975 wrote guidelines for recombinant DNA…- Live
- Paper
- Gene therapy and gene editing
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Video
ELSIcon2022 Panel: How does Genetics and Racial Disparities influence Stillbirth Risk and Reoccurrence?
ELSIcon2022 • Panel • May 27, 2022 Tsegaselassie Workalemahu, Sarah Heerboth, Naomi, Riches, Erin Rothwell Stillbirths account for most perinatal deaths and almost half of them are attributed to an…- Uptake of genetic testing
- Genetic testing and screening
- Panel
- Pre-Recorded
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Video
ELSIcon2022 Paper: In the Shadows of Virtual Family Trees
ELSIcon2022 • Paper • May 27, 2022 Amy McGuire, André Brock, Katrina Ellis, Lynette Hammond Gerido Technology is changing the ways in which we relate to each other, create knowledge, and share…- Data and data stewardship
- Education and public reception of genetic science
- Paper
- Pre-Recorded
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Video
CRISPR and Human Identity: Governing Germline Gene Editing
International uproar followed the announcement in late 2018 of the birth of twin girls whose genomes had been edited with CRISPR genome editing technology. Critics pointed not only to the health…- CRISPR
- Personal Identity
- Gene Editing
- Governance of emerging genomic technologies
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Video
ELSIcon2022 Late-Breaking: Is a gene running in your family? Perceptions of responsibility to inform relatives about genetic cancer predisposition and risk management: an in-depth qualitative Swiss-Korean comparative analysis
ELSIcon2022 • Networking Session • Late-breaking Abstracts • May 31, 2022 Monica Aceti This study examines the different meanings of responsibility to disclose to family about genetic…- Live
- Networking Session
- Late-breaking Abstracts
- Disclosure of genetic risk information to relatives
- Genetic Counseling
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Video
Defining the Critical Components of Informed Consent for Genetic Testing
Kelly Ormond, MS, CGC - Stanford University ELSIconversations - March 26, 2021 The Consent And Disclosure Recommendations (CADRe) workgroup within ClinGen (Clinicalgenome.org) consortia has been…- Genetic Testing
- Informed Consent
- clinical genetics
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Video
Illuminating Ethical Issues Encountered in Population Screening Programs
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical…- Population screening and public health genomics
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Video
ELSIcon2022 Paper: Is it just for a screening program to give people all the information they want?
ELSIcon2022 • Paper • June 2, 2022 Lisa Dive, Ainsley Newson What normative role should people’s preferences should play in determining access to genomic information, particularly in relation…- Live
- Paper
- Return of Results
- Genetic testing and screening
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Video
Exploring Complexity in the Biology Classroom: Beyond Mendel: Leading with Complexity when Teaching Human Genetics
Presenters: Shawneequa Callier, JD, MA & Eimear Kenny, PhD Moderator: Rob O'Malley, PhD Date: May 11 2023 3-4 pm PT / 6-7 pm ET Teaching Mendelian patterns of inheritance is a…- biology education