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Publication
Multicultural medicine and health disparities
McGraw-HillDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Children's health and children's rights
Martinus NijhoffDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
PROJECT NARRATIVE Human genome editing is a powerful tool for creating precise changes to the genome, the complete set of genetic material. However, human genome editing raises significant ethical,…- Address
- Adopted
- base
- Basic Science
- Belief
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- brca gene
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Grant Abstract
Emerging Issues In Criminal Forensic Genetics
Criminal DNA profiling could soon include phenotypic markers for attributes such as eye, skin, and hair color, gait, ancestry, and predisposition to behavioral traits such as smoking. This technology…- Alcoholism
- Appearance
- Attention
- Australia
- Behavioral
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
Genetic testing has a multigenerational impact, as actionable pathogenic variants can identify multiple family members at risk. Currently in the United States, a person at actionable risk through…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
-
Grant Abstract
Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?
PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these…- Area
- base
- Basic Science
- Biological Sciences
- Case Study
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
PROJECT NARRATIVE Very little research has been done regarding non-STI-related health disparities affecting sexual and gender minorities (SGM). Even less is known about what these minorities think…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude