Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
Institution: VANDERBILT UNIVERSITY MEDICAL CENTER
FOA Number: PA-17-446
PROJECT NARRATIVE Very little research has been done regarding non-STI-related health disparities affecting sexual and gender minorities (SGM). Even less is known about what these minorities think about the desirability of research that combines genetic variation and data about sexual orientation and gender identity with other health and demographic information, strategies required to understand and address these disparities. In this pilot study, we will develop and use a focus group guide with educational materials with diverse SGM groups to explore these issues, tools that can then be used in other sites around the country in future research.
NATIONAL HUMAN GENOME RESEARCH INSTITUTE
Sep 1, 2019
Aug 31, 2021