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Grant Abstract
ELSI Biennial Congress
PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…- Address
- Affect
- American
- base
- Bioethics
-
Grant Abstract
Appropriation, Adaptation, and Political Mobilization of Genomics Research
This project will analyze how US white nationalists are appropriating, adapting, politically mobilizing and changing themselves in response to contemporary genomics research. White nationalists have…- Admixture
- Advocate
- African
- Agreement
- American
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Grant Abstract
ELSI Biennial Congress
PROJECT NARRATIVE The goal of the biennial ELSI Congress is to provide a dedicated, regularly scheduled meeting for researchers focused on the ethical, legal and social implications of genetic and…- Address
- Affect
- American
- base
- Bioethics
-
Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…- Address
- Attitude
- Belief
- Belmont Report
- benefit sharing
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Grant Abstract
Genetic data partnerships: Enabling equitable access within academic/private data sharing agreements
PROJECT NARRATIVE ?Precision medicine? and other advances in genetic research require access to massive amounts of genetic and related health data, but private genetic datasets are growing rapidly in…- Agreement
- Automobile Driving
- base
- career
- career development
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Grant Abstract
Understanding All of Us Enrollees and Decliners ™ Motivations to Enhance Recruitment and Retention: FQHC's barriers to caring for patients with clinically actionable genetic research results
PROJECT NARRATIVE Our overall objective is to make progress toward mitigating the challenges that un/underinsured participants in the All of Us Research Program may face when they access care for…- African American
- All of Us Research Program
- Anxiety
- barrier to care
- care systems
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Grant Abstract
Admin. Supplement to: Ensuring Patients' Informed Access to Noninvasive Prenatal Testing
PROJECT NARRATIVE The goal of this study is to study the effect of COVID-19 on prenatal healthcare delivery, specifically patients' ability to access prenatal genetic screening and diagnostic…- 2019-nCoV
- Affect
- Attention
- base
- Benefits and Risks
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Grant Abstract
West African Bioethics Training Program
Accompanying the increase in research activities worldwide, particularly in developing countries where the citizens are poor, vulnerable and un-empowered, is increasing concern about the ethical…- Advisory Committees
- Africa
- African
- Area
- authority
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Grant Abstract
Methods for Promoting Public Dialogue on the Use of Residual Newborn Screening
Newborn screening (NBS) is conducted on virtually every child born in the U.S. primarily through state-based public health programs. Following testing, there is blood leftover on each child that is…- Advisory Committees
- Advocate
- Affect
- Attitude
- Authorization documentation
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Grant Abstract
Return of Results from Psychiatric Genomics Research: Attitudes and Barriers
This project employs a multi-method, transdisciplinary approach that combines ethnographic participant- observation, interview research methods, ethical, legal, and public policy analyses. The two…- Attitude
- authority
- Bipolar Disorder
- Caring
- Case Study