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Grant Abstract
Expanded Genetics Educational Program for Nursing Faculty
The two specific aims are unchanged for the expanded Genetics Educational Program for Nursing Faculty: a) to increase nursing faculty knowledge about genetics and its clinical application, and b) to…- Continuing Education
- curriculum
- Genetic Counseling
- Genetics
- Internet
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Grant Abstract
An Empirical Study of Open Source Bioinformatics Software
The post-genomic era is characterized by a strong and growing need for bioinformatics software tools designed to analyze and organize structural and functional genomic information. Intellectual…- Bioinformatics
- Clinical Research
- community
- computer program /software
- computer system design /evaluation
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Grant Abstract
Returning Exome and Whole Genome Results To Underserved Minority Populations
Exome sequencing (ES) and whole genome sequencing (WGS) are transformative new tools for discovery of genetic risk factors for both rare and common diseases and offer the potential of personalized…- Adult
- African American
- American
- Anthropology
- Anxiety
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Grant Abstract
Overcoming Genetic Literacy Barriers Among Underserved Minorities
Advances stemming from the Human Genome Project have prompted concerns about the general public's readiness to utilize this information to make informed health decisions. As a strategy to…- Access to Information
- Address
- Adopted
- Adoption
- Advocate
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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Societal Impact of Human Genetic Engineering
The purpose of this project is to develop models for broad-based community dialogue to examine the value and ethical dimensions of emerging technologies in applied human genetics. The project will be…- curriculum
- Ethics
- genetic disorder
- genetic manipulation
- human population genetics
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Grant Abstract
Public Perspectives and Experience Regarding Genetic Ancestry Testing
Personal genetic and genomic information is becoming more widely available and affordable, generating increased discussions on the merits and dangers of direct-to-consumer (DTC) genetic testing and…- Advocacy
- Affect
- Attention
- Attitude
- Awareness
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
Sexual and gender minorities (SGMs) experience significant disparities in health and health care. These inequities result from complex interactions among social, political, environmental, and genomic…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Center for Genetic Research, Ethics, and Law (CGREAL)
The mission of the proposed Center for Genetics Research Ethics and Law (CGREL) is to foster sustained interdisciplinary research on the ethical, legal, and social issues involved in the design and…- Agreement
- Architecture
- Belief
- benefit sharing
- Collaborations
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Grant Abstract
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud
PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how…- Data science
- bioethics
- Algorithms
- Delphi Study
- computerized tools