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News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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News
Update on ASHG 2021 Annual Meeting
Dear ASHG Members, With the successful conclusion of ASHG’s first ever virtual meeting, we want to provide you with an update on the Society’s 2021 Annual Meeting. Given the continued uncertainty…- ASHG
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News
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future…- Consent
- data and biospecimens consent
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News
ELSI in Review • July 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2022 set explores regulations for direct-to-consumer… -
News
A Glimpse into My ELSI Journey
In this Trainee Spotlight article, Sheethal Jose, a doctoral student at Johns Hopkins Bloomberg School of Public Health and the Berman Institute of Bioethics shares with us her research… -
News
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…- working group
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News
Collaborating with the CERA
How can I collaborate with the CERA? The Center for ELSI Resources and Analysis (CERA) is pleased to collaborate with individuals and organizations who share the mission of enhancing the production…- collaborate
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News
Joy Boyer, Reflections on a Career in ELSI
An exceptional team of program directors administers the ELSI Research Program at the National Human Genome Research Institute (NHGRI), the ongoing, extramural funding program that has served as a… -
News
Should I Submit This Paper to the American Journal of Bioethics? CERA Interviews AJOB Editor-in-Chief David Magnus
Editor-in-Chief and co-founder of the American Journal of Bioethics (AJOB), David Magnus, Ph.D., is well positioned to explain the advantages of selecting this journal as a home for your ELSI…- Publishing
- academic publishing