The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
131 - 140 of 1406 Topics
-
Video
ELSIcon2022 Paper: Cystic Fibrosis Communities: Shifting Sites of Prognostic Imagination
ELSIcon2022 • Paper • May 27, 2022 Rebecca Mueller Long before COVID-19 made social distancing normal, people with cystic fibrosis already practiced such behaviors. Between the 1980s and the…- Lived experience of genetic conditions
- Race, disability, and gender studies
- Paper
- Pre-Recorded
-
Publication
Indigenous population genome databases for India and South Asia: Emerging need for health and social applications
Journal of Genetics -
-
Video
ELSIcon2022 Paper: The Sangre Por Salud Community Advisory Board: Enhancing Genomic Medicine Research within a Latino-serving Federally Qualified Health Center.
ELSIcon2022 • Paper • June 2, 2022 Valentina Hernandez, Davinder Singh, Iftikhar Kullo, Elena De Filippis, Karen Meagher, Sara Watson, Richard Sharp, Gabriel Shaibi, Crystal Gonzalez…- Live
- Paper
- Community oversight of research
-
Grant Abstract
Genetic Privacy and Identity in Community Settings - GetPreCiSe
The incorporation of genetics and genomics into medical care and the public domain raises new challenges for how we understand privacy and identity, concepts that have long been closely linked in…- Address
- Advertising
- Affect
- Age
- All of Us Research Program
-
Grant Abstract
Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)
PROJECT NARRATIVE This study aims to investigate facilitators and barriers to long-term equitable partnerships in genomics research between communities and research institutions. We focus on legal…- community based participatory research
- trustworthiness
- stakeholder perspectives
- Beneficence
- Decision making
-
Grant Abstract
Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/…- Address
- African American
- All of Us Research Program
- American
- behavioral health
-
Publication
Genes, ownership, and indigenous reality
Social Science and MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Indigenous peoples and genetic population research: Reflections on a culturally appropriate model of indigenous participant consent
Ashgate Pub.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…