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News
ELSI in Review • May 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2024 set explores parental perspectives on early life… -
News
21,000 GenETHX Records Added to the ELSIhub Publications Database
We are excited to announce the migration of over 21,000 publications from the Genetics and Ethics Database (GenETHX) created by the Bioethics Research Library (BRL), Kennedy Institute of Ethics (KIE…- ELSI publications
- GenETHX
- Georgetown University, Kennedy Institute of Ethics, Bioethics Research Library
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News
ELSIcon2020 ELSIconversations
ELSIcon2020 ELSIconversations focused on presentations that were originally accepted for the canceled 2020 ELSI Congress. The 21 participants recorded 15-minute presentations of their… -
News
ELSI in Review • November 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2023 set explores the ethics of risk prediction… -
News
A Bigger View: Ingrid Holm on Sharing Research Tools
CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on…- research tools
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News
ELSI in Review • March 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our March 2022 set explores rare genetic diseases…- rare genetic disease
- Results disclosure
- Assisted Reproductive Technology
- preimplantation genetic diagnosis
- Genetic Testing
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News
Natural and social scientists differ in their conceptualization and use of race at a critical moment
In a recent contribution to the Yearbook of Physical Anthropology, Jada Benn Torres reviews the “race-as-biology” paradigms that were promulgated early in the discipline and tracks the emergence of…- genetic anthropology
- race and genetics
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News
Corporate wellness programs, a threat to privacy?
Genetic testing is increasingly offered as a benefit in employer-sponsored health and wellness programs. Despite rapidly growing popularity of wellness programs, there is little evidence to support…- Genetic Testing
- Wellness programs
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News
LawSeqSM: Confronting the Legal Barriers to Genomic Medicine
On December 2, 2020 national experts convened for a Zoom webinar on “LawSeqSM: Facing the Legal Barriers to Genomic Research & Precision Medicine.” This event grew out of a project funded by the…- GENETIC engineering laws
- LawSeq
- Statutes and Laws
- genetic privacy law
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News
The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective
The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…- Genetic Data Sharing and Management