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Research Tool
CSER Phase 2 Parental Patient Measures – BASELINE
This baseline measure for parents enables the collection of information on sex, age, language, income, education level, insurance status, country of origin, access to care, health literacy,… -
Research Tool
Influences on Precision Medicine Knowledge and Attitudes (Survey)
This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their… -
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Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research among Lay Individuals who have Participated in Genomics Research
The Manual for Deliberative Focus Group Discussions (dFGDs) on Feedback of Individual Findings in Genomic Research was originally developed for use among adults and adolescents enrolled in genomics… -
Research Tool
The Genetics of Alzheimer's (Video)
This short (3 minute) English language video provides information on Alzheimer's disease, including its genetic component. This video underscores Alzheimer's disease as a complex and multi-… -
Research Tool
Genetic Literacy Survey
Abrams and colleagues designed the Genetics Literacy Survey to gather information about how the public understands genomics and applies their knowledge in everyday scenarios beyond medical settings,… -
Research Tool
Measure of Genetics Knowledge
This measure of knowledge about genetics has 21-items completed on a binary scale. Performance can be scored by summing the number of correct answers (chance performance is 10.5). -
Research Tool
Genetic Knowledge Index
Clarke and colleagues developed the Genetic Knowledge Index using a combination of existing measures, including one from another CSER project for use in a study that assessed willingness to pay for… -
Research Tool
Genetic Essentialistic Tendencies Measure
This scale contains 24 items and assesses the degree to which people have essentialist views of genetic causes. Responses can either be completed on a scale that ranges from 1 (Strongly Disagree) to… -
Research Tool
Genetic Literacy and Comprehension (GLAC) Measure
Hooker and colleagues designed the Genetic Literacy and Comprehension (GLAC) measure to assess research participant familiarity with eight commonly used genetic terms and concepts (genetic,… -
Research Tool
Genetic Literacy Fast Test (GeneLiFT)
The Genetic Literacy Fast Test (GeneLiFT) is a self-administered genetic literacy test for individuals who intend to undergo genetic screening with return of results.