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Research Tool
Genetics Post-Course Survey (Not-Genotyped)
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.… -
Research Tool
Instrument for assessing mass media reporting of disease-related genetic discoveries
Instrument for assessing mass media reporting of disease-related genetic discoveries is a 38-item tool for evaluating the quality and balance of media stories reporting genetic discoveries related to… -
Research Tool
Consent to Share Genetic and Health Information, Clinical Genome Resource (ClinGen)
This one-page consent form helps to faciliate consent and promote broad genomic data sharing in the clinical setting. The language use on the form is consistent with the NIH Genomic Data Sharing… -
Research Tool
The Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) Questionnaire
Carver and colleagues developed the Public Understanding and Attitudes towards Genetics and Genomics (PUGGS) questionnaire to assess college students' knowledge of genetics, including gene-… -
Research Tool
Interview Guide: Experiences of Sharing Direct-to-Consumer Genetic Testing Results
This interview guide seeks to understand the experiences of those who publicly shared their direct-to-consumer genetic testing results on the online platform openSNP. -
Research Tool
18-Item Opinion Poll, Return of Genetic Test Results
This 18-item opinion poll includes questions designed to assess participant opinion on genetics research, genetic tests, and results. The poll focuses on familiar medical encounters and services. -
Research Tool
Public Attitudes Toward Genetic Modification in Dairy Cattle, Survey
This survey can be used to collect respondent characteristics, attitudes about the genetic modification (GM) of cattle, the perceived effectiveness of GM modifications, knowledge of GM, and attitudes… -
Research Tool
Interview Guide: Genetic Health Professionals’ Experiences with Informed Consent in Diagnostic Genomic Sequencing
This interview guide seeks to understand genetic health professionals' experiences with obtaining informed consent for diagnostic genomic sequencing from patients. -
Research Tool
REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale
Chung and colleagues created the REVEAL Impact of Genetic Testing in Alzheimer’s Disease (IGT-AD) Scale to measure psychological impact of genetic susceptibility testing for Alzheimer disease (AD).… -
Research Tool
Attitudes Toward Prenatal Genetic Screening and Testing in Twin Pregnancies Survey
Reese and colleagues designed this survey to collect information on attitudes toward prenatal genetic screening and testing, including changes in attitude toward or uptake of testing related to the…