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Research Tool
Eugenics Acceptance Measure
The Eugenics Acceptance Measure contains 15 items that can be completed on a 5-point scale ranging from 1 (Strongly Disagree) to 5 (Strongly Agree). -
Research Tool
Semi-structured Interview Guide: Experiences with Personal Genomic Testing
This semi-structured interview guide explores perceptions and use of personal genomic testing (PGT). -
Research Tool
Misattributed Paternity Questionnaire
Lowe and colleagues developed a questionnaire containing two scenarios in which misattributed paternity is incidentally discovered, possible courses of action for the doctor in each scenario, and a… -
Research Tool
Preferences for the Return of Pediatric Biobank Results Survey
Christensen and colleagues developed a survey to enable parents of pediatric patients to set preferences for return of individual results from research on pediatric biobank samples based on disease… -
Research Tool
CSER Phase 1: MedSeq Trials Published Study Protocol
This published study protocol for the MedSeq trials includes a description of the study design; recruitment, enrollment, and sample size plan; patient exclusion/inclusion criteria; and process of… -
Research Tool
Genomic Information and the Right Not to Know Questionnaire
Flatau and colleagues developed this survey to assess informational preferences among German patients, healthcare professionals, and members of the public in a genetic testing context. The survey… -
Research Tool
CSER Phase 1: Revised Carrier Status Explanation Card
This hort explanation card defines carrier status for recessive genetic conditions. -
Research Tool
Genomcis Knowledge and Attitudes Toward Public Health Genomics, Survey for Public Health Professionals
This survey that measures genomics knowledge and attitudes toward the role of public health professionals in implementing public health genomics for public health professionals. The survey is… -
Research Tool
CSER Phase 2 Provider Return of Results Follow-up #1 Survey
CSER Phase 2 Provider Return of Results Follow-up #1 Survey is administered 0-6 weeks post-return of results to providers of research participants that were returned positive, negative, VUS, and… -
Research Tool
ELSI Research Methods Questionnaire
Cho and colleagues created this questionnaire to understand the research methodologies currently being used in the study of the ethical, legal, and social implications (ELSI) of genetics and genomics.