The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
121 - 130 of 221 Topics
-
Video
ELSIcon2022 Flash: INSIGHT @ Work: An Interdisciplinary Study on the Ethical, Legal and Social, Implications (ELSI) of Voluntary Workplace Genomic Testing (wGT)
ELSIcon2022 • Flash • May 27, 2022 Alyx Vogle, Betty Cohn, Rebecca Ferber, Kerry Ryan, Gregory Feero, Debra Mathews, Anya Prince, Kayte Spector-Bagdady, Kunai Sanghavi, Wendy Uhlmann, Charles Lee…- Pre-Recorded
- Flash
- Stigma and discrimination
- Genetic testing and screening
-
Video
ELSIcon2022 Flash: Engaging Adolescents in Genomic Decision Making
ELSIcon2022 • Flash • June 3, 2022 Amy Blumling, Melanie Myers, Cindy Prows, Kristin Childers-Buschie, Michelle McGowan Background: Professional organizations have historically recommended…- Live
- Flash
- Return of Results
- Genetic testing and screening
-
Video
ELSIcon2022 Paper: Is Non-invasive Prenatal Testing Really Invasive? Examining Black Women’s Perceptions of Non-Invasive Prenatal Testing for Sickle Cell Disease
ELSIcon2022 • Paper • June 3, 2022 Presented by: Shameka Poetry Thomas Non-invasive prenatal testing (NIPT) has become standard prenatal care in the United States and is currently being…- Live
- Paper
- Uptake of genetic testing
- reproductive genetics
-
Video
ELSIcon2022 Paper: ELSI and the New Precision Stewards?
ELSIcon2022 • Paper • May 27, 2022 Sara Watson, Karen Meagher Advances in pathogen genomics and molecular epidemiology are keeping pace with next generation sequencing translational…- Pre-Recorded
- Paper
- Population screening and public health genomics
- Population Genetics
-
Video
ELSIcon2022 Paper: Toward an anthropology of rare disease
ELSIcon2022 • Paper • May 27, 2022 Meghan Halley, Colin Halverson, Marsha Michie Rare genetic diseases affect an estimated 330 million individuals worldwide. These patients often struggle to…- Lived experience of genetic conditions
- equity and justice in genetics
- Paper
- Pre-Recorded
-
Video
ELSIcon2022 Paper: When Covering and Discovering Are at Odds: How the Logic of Health Insurance Undercuts the Promise of Precision Medicine for People with Hereditary Cancer Risks
ELSIcon2022 • Paper • June 1, 2022 Mark Schlesinger, Rachel Grob, Emily Mrig The past two decades have seen significant advancement in precision medicine approaches to preventing and treating…- Live
- Paper
- Access to genetic screening and therapies
-
Video
ELSIcon2022 Flash: Reconstruction of Normality Following the Diagnosis of Ehlers Danlos Syndromes
ELSIcon2022 • Flash • May 27, 2022 Hannah Mundinger, Kimberly Kaphingst, Allison Blumling Background: The Ehlers Danlos Syndromes (EDS) are a constellation of rare heritable connective tissue…- Lived experience of genetic conditions
- Patient-provider communication
- Flash
- Pre-Recorded
-
Video
ELSIcon2022 Paper: Returning Polygenic Risk Scores to Participants in a Pragmatic Clinical Trial of Breast Cancer Screening: Ethical Dilemmas and Participant (mis)Understanding
ELSIcon2022 • Paper • June 3, 2022 Jennifer James, Leslie Riddle, Mika Caruncho, Barbara Koenig, Galen Joseph Population-based genomic screening is at the forefront of a new approach to…- Live
- Paper
- Screening for polygenic conditions and risk scores
- Genetic testing and screening
-
Video
Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease
ELSI Friday Forum • June 11, 2021 Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the…- sickle cell disease
- Gene Therapy / Gene Transfer
- Genetic Intervention
- Gene Transfer
-
Video
Using an implementation research tool to guide the implementation of non-invasive prenatal screening
Tierry M. Laforce, MA, PhD Candidate - Université de Montréal ELSIconversations - April 16, 2021 cffDNA screening has changed the landscape of prenatal screening. In Canada, 2 provinces and 1…- Prenatal genetic screening
- precision medicine