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Video
ELSIcon2022 Panel: Permeable Membranes: How the blurring of boundaries and merging of silos should reshape ELSI research
ELSIcon2022 • Panel Session 7 • June 1, 2022 Brian Hutler, Debra Matthews, Rebecca Wilbanks Advancing understanding of the mechanisms of disease point to a growing number of examples of '…- Live
- Panel
- Reflections on the ELSI field
- precision medicine
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Video
ELSIcon2022 Paper: Whose future should we worry about?
ELSIcon2022 • Paper • May 27, 2022 Elisa Calleja When talking about genetic research, one of the goals is to successfully intervene in germinal cells and eliminate genetic diseases, so that…- Emerging technologies - public opinion and policy
- Gene therapy and gene editing
- Paper
- Pre-Recorded
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Video
ELSIcon2022 Welcome and Keynote: The Fallacy of Biological Race: Systemic Racism in Genomics
Welcome and Introduction by Sandra Soo-Jin Lee, PhD and Mildred Cho, PhD. Keynote: "The Fallacy of Biological Race: Systemic Racism in Genomics" presented by Ruqaiijah Yearby, JD, MPH. The…- Live
- Keynote Session
- Stigma and discrimination
- Genomics
- structural racism
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Video
ELSIconversations - The Misuse of Genomic Data, Session 2
Full title: What Can Geneticists Do to Address the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
ELSIconversations - The Misuse of Genomic Data, Session 1
Full title: What Can Geneticists Do to Prevent the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
Diversity Measures in Genomic Medicine
Carlee Dawson, BA ADWG ELSIconversations Session 2 - May 6, 2022 Question: What is the most important information, conceptually, for clinical genetics professionals to do their jobs well? Is…- diversity
- Genomic medicine
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Video
Advocacy and Allyship in ELSI: Opportunities and Challenges
Objectivity is a weight-bearing pillar in scientific inquiry, a norm to ensure that research and its outcomes are “value free” and unaffected by subjective value judgement. Yet ELSI research, as a…- Advocacy
- allyship
- policymaking
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Video
ELSIcon2022 Paper: How and why do researchers use “Ancestry”?
ELSIcon2022 • Paper • June 1, 2022 Anna Lewis, Bege Dauda, Santiago Molina As the ways in which race is used in biomedicine have come under scrutiny, including for contribution to race-…- Live
- Paper
- Language and categorization
- Ethnicity
- Use of race and ancestry in research and the clinic
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Video
ELSIcon2022 Paper: Return of Secondary Genomic Findings: Experiences of Sickle Cell Disease Research Participants
ELSIcon2022 • Paper • June 2, 2022 K. Jameson Floyd, Ashley Buscetta, Vence Bonham While the body of research investigating research participants’ views on the return of actionable…- Live
- Paper
- Return of Results
- health disparities
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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice