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Video
Illuminating Ethical Issues Encountered in Population Screening Programs
In the first of three sessions, panelists with experience with population genetic screening programs will discuss issues that have arisen with existing screening programs. Topics may include ethical…- Population screening and public health genomics
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Video
ELSIcon2022 Paper: Embryoids: What are they, should we be concerned, should they be regulated, and if so, how?
ELSIcon2022 • Paper • June 3, 2022 Ana Iltis, Kirstin Matthews Researchers have made significant strides toward studying human embryogenesis by culturing human embryos longer and creating…- Live
- Paper
- Emerging technologies - public opinion and policy
- Gene therapy and gene editing
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Video
ELSIcon2022 Paper: When State Laws Conflict: Choice of Law Challenges in Multi-Site Research
ELSIcon2022 • Paper • May 31, 2022 Laura Beskow, Leslie Wolf Our previous research demonstrated that precision medicine research implicates numerous state laws, including human subjects…- Live
- Paper
- Laws and research sites
- precision medicine
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Video
ELSIcon2022 Flash: What Led to the Abolition of Iowa’s State Eugenics Program in 1977?
ELSIcon2022 • Flash • May 31, 2022 Bridget Easler, Breanna Rinker, Alexandra Minna Stern, Elyse Thulin, Nicole Novak Iowa’s Board of Eugenics (BoE), which oversaw the sterilization of 1,910…- Live
- Flash
- Eugenic sterilization in the 20th century
- Race, disability, and gender studies
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Video
ELSIcon2022 Late-Breaking: Impact of a direct-to-consumer (DTC) report on Alpha-1 antitrypsin deficiency (AATD) risk on clinical diagnosis of disease and on self-reported behaviors
ELSIcon2022 • Networking Session • Late-breaking Abstracts • June 2, 2022 Sarah Elson Background: Alpha-1 antitrypsin deficiency (AATD) is an autosomal co-dominant condition that predisposes…- Live
- Networking Session
- Late-breaking Abstracts
- precision medicine
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Video
Population Descriptors in Genomic Research: Applying the NASEM Recommendations
This ELSI Friday Forum took place on July 14, 2023. History demonstrates that the potential for typological thinking continues to be a hazard of genetic research involving human groups. In 2022 the…- population descriptors
- NASEM
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Video
Genomics and Data Sovereignty: Policy and Deliberative Approaches for Engaging Indigenous Communities
ELSI Friday Forum • May 14, 2021 Nanibaa’ Garrison, PhD, moderates the session with panelists Stephanie Russo Carroll, DrPH, MPH, and Justin Lund, MA, discussing Indigenous data sovereignty and…- Indigenous Communities
- Alaska Native/American Indian Health Research
- genomic data sharing policy
- data sovereignty
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Video
Impact of SCOTUS's Dobbs Decision on Prenatal Genomics Research and Practice
The upcoming Supreme Court’s decision in Dobbs v. Jackson Women’s Health is likely to change the landscape of clinical practice in prenatal genomic medicine. With the prospect of overturning Roe v.…- federal policy
- Reproductive Health
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Video
Addressing Racism in Medical Research and Publishing
A Discussion for Journalists • November 30, 2021 Racism and unconscious bias persist in medical research. Given that journalists who write, or aspire to write, about medicine look at journals for…- racism in medicine. medical research, and publishing
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Video
ELSIcon2022 Paper: The Biologization of Morality: Criminal Justice as a Matter of Public Health
ELSIcon2022 • Paper • May 31, 2022 Zachary Ascherl A growing wealth of literature explains criminal behavior in terms of its environmental, neurological, and genetic causes. Legal practitioners…- Live
- Paper
- Emerging technologies - public opinion and policy
- Law, regulation, and governance