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Grant Abstract
Challenges of Informed Consent in Return of Data from Genomic Research
Genomic data, including findings incidental to the purpose for which a study is undertaken, can contain information of use and importance to research subjects related to their health, lifestyle, and…- Access to Information
- Address
- Adverse effects
- adverse outcome
- Alzheimer's Disease
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Grant Abstract
Addressing Ethical Challenges in Networked Biorepositories
Individual institutions across the country have worked to support research in a wide variety of areas, including precision medicine research, by developing large biorepositories comprised of…- American
- Area
- Authorization documentation
- biobank
- Biological
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Video
Population Descriptors in Genomic Research: Applying the NASEM Recommendations
This ELSI Friday Forum took place on July 14, 2023. History demonstrates that the potential for typological thinking continues to be a hazard of genetic research involving human groups. In 2022 the…- population descriptors
- NASEM
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News
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…- working group
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Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Publication
NIPT-based screening for Down syndrome and beyond: what do pregnant women think?
Prenatal Diagnosis -
Grant Abstract
Understanding All of Us Enrollees and Decliners Motivations to Enhance Recruitment and Retention
PROJECT NARRATIVE The proposed study contributes to the long-term goal of advancing diverse participation in precision medicine research by mapping the contours of why people, especially African…- African American
- All of Us Research Program
- American
- Biological
- Biomedical Research