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News
Introducing the Qualitative Data Sharing (QDS) Toolkit
We spoke with James M. DuBois, DSc, PhD, principal investigator of the QDS Project, about the new Qualitative Data Sharing (QDS) Toolkit. The QDS project team created the toolkit to support… -
Grant Abstract
Feasibility of an Innovative Method to Understand the Dynamics of Choice and Create Diversity in Genomics Research among Older African Americans
PROJECT NARRATIVE In response to the continued underrepresentation of African Americans in aging research involving genetic material, this study seeks to test the feasibility of an innovative method…- Adult
- African American
- aged
- Aging
- Alzheimer's Disease
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Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
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Grant Abstract
Factors Influencing Access and Utilization of Genetic Prenatal Care Services Among Women from Underserved Populations
Prenatal screening and testing technologies using genetic methods are rapidly expanding, offering increasing amounts of genetic information about the fetus. However, research shows that women from…- Advisory Committees
- Affect
- African American
- American
- American College of Obstetricians and Gynecologists
-
Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
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Grant Abstract
Genetic Education for Native Americans
This 3 year project intends to modify existing genetics education curricula to create culturally competent education interventions (i.e., independent modules and a 20-hour comprehensive intervention…- adult human (21+)
- community
- culture
- education evaluation /planning
- Genetic Counseling
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Grant Abstract
Genetics Education: Resources for Health Professionals
The goal of the proposed project is to address a well-documented lack of genetics education among health professionals, which is a rate-limiting step in the integration of genetics and genomics into…- Adult
- Awareness
- base
- Charge
- clinical practice
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Grant Abstract
Genetic Privacy and Identity in Sexual and Gender Minorities: GetPrISM
PROJECT NARRATIVE Very little research has been done regarding non-STI-related health disparities affecting sexual and gender minorities (SGM). Even less is known about what these minorities think…- Academic Medical Centers
- Address
- Advocate
- Affect
- Attitude
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Grant Abstract
Parent Education about Newborn Screening and Bloodspot Retention
The objective of this project is to address the content, timing, efficacy, and impact of prenatal education about newborn screening generally and bloodspot sample retention specifically. This project…- authority
- Authorization documentation
- base
- Child
- Communities
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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection