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NIH Jun 1, 2020 | R21
Feasibility of an Innovative Method to Understand the Dynamics of Choice and Create Diversity in Genomics Research among Older African Americans
Institution: University of Wisconsin-Madison
FOA Number: PA-17-446
Abstract
PROJECT NARRATIVE In response to the continued underrepresentation of African Americans in aging research involving genetic material, this study seeks to test the feasibility of an innovative method to explore the interaction of multiple factors that influence the decision to participate in research that can be applied to representative samples of, typically underrepresented, participants. Through a gamified, card sort adaptation of a factorial survey design, we will examine a range of study ?attributes? and determine: how each attribute contributes to the decision to participate in research; the relative importance of each attribute; the ways in which attributes interact to create a final decision; the socially-constructed meaning of attributes (relative to social group); and how the concept of trustworthiness is expressed symbolically to impact the decision to participate. Our approach is designed to create: (1) a more accurate and actionable understanding of the challenges of genomics research engagement; and (2) an effective and simple, mobile-based methodology that can be used to test the feasibility/acceptability of research design attributes prior to recruitment for a wide range of studies.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
R21Project Number:
R21HG011503Start Date:
Jun 1, 2020End Date:
Apr 30, 2023PROJECT TERMS:
Adult, African American, aged, Aging, Alzheimer's Disease, Attention, base, Cardiovascular Diseases, Categories, Characteristics, Chronic Disease, classification trees, Clinical Research, cognitive interview, community based research, community center, Community Engagement, Community Health, Consent, Data, Decision Making, design, Diabetes Mellitus, disability, Disease, Evaluation, experience, feasibility testing, Genetic Materials, Genetic Research, Genomics, Goals, Health, Health Equity, Individual, innovation, Institutes, Knowledge, Length, Life, Linear Models, Lung diseases, Medical, Mental Depression, Methodology, Methods, Minority recruitment, Modernization, Nature, Participant, Pattern, Population, Procedures, Process, recruit, regression trees, Reporting, Research, Research Design, Research Personnel, research study, Resources, respiratory, response, Role, Sample Size, Sampling, Sampling Studies, social, social group, Source, Structure, success, Surveys, Tablets, Translational Research, Trust, trustworthiness, Underrepresented Populations, United States National Institutes of Health, University resources, Ursidae Family, willingness, Wisconsin