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Publication
Perspectives on choice of law challenges in multistate precision medicine research
Journal of Law and the BiosciencesTo explore the implications of the different laws governing research in each state for participant rights and protections, Beskow and colleagues interviewed experts in law, human research protections… -
Additional Resource
Precision Medicine: Science, Ethics, and Culture Syllabus
This seminar developed by Rachel Adams, PhD, Maya Sabatello, LLB, PhD, and Samuel Sternberg, PhD covers the scientific foundations of precision medicine and its social and ethical dimensions,…- precision medicine
- personalized genomic medicine
- GWAS
- genetic counseling
- return of results
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Video
ELSIcon2022 Flash: Communicating precision medicine research: multidisciplinary teams and diverse communities
ELSIcon2022 • Flash • May 31, 2022 Julie Beans Introduction: Precision medicine research investigates the differences in individuals’ genetics, environment, and lifestyle to tailor health…- Live
- Flash
- tools
- precision medicine
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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
A major challenge for precision medicine research is including historically under-represented groups in numbers sufficient to ensure statistically valid inferences of the influence of relevant risk…- Behavioral
- Biomedical Research
- Categories
- Collection
- Communities
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Research Tool
Influences on Precision Medicine Knowledge and Attitudes (Survey)
This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their… -
Research Tool
Attitudes Toward Genomics and Precision Medicine (AGPM)
DuBois and colleagues developed the Attitudes Toward Genomics and Precision Medicine (AGPM), a novel measure which evaluates attitudes toward activities such as genetic testing, collecting… -
Publication
Increasing inclusivity in precision medicine research: Views of individuals who are deaf and hard of hearing
Genetics in MedicineGarofalo and colleagues surveyed 267 deaf/hard of hearing individuals and found high levels of support for precision medicine research. Participant responses also revealed potentially overwhelming… -
Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
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Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
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