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Grant Abstract

The Ethics of Inclusion: Diversity in Precision Medicine Research

A major challenge for precision medicine research is including historically under-represented groups in numbers sufficient to ensure statistically valid inferences of the influence of relevant risk…

Research Tool

Influences on Precision Medicine Knowledge and Attitudes (Survey)

This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their…

Grant Abstract

The Ethics of Inclusion: Diversity in Precision Medicine Research

PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…

Grant Abstract

The Ethics of Inclusion: Diversity in Precision Medicine Research

PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…

Video

Precision Medicine Research, ‘All of Us’, and Inclusion

A Discussion for Journalists • November 16, 2021 This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…

Grant Abstract

Integrating Ethics into Machine Learning for Precision Medicine

The overall goal of this project is to understand how to encourage and enable people who are developing artificial intelligence for personalized health care to be aware of values in their daily…

Publication

The precision medicine nation

Hastings Center Report
Maya Sabatello, Paul S. Appelbaum

Publication

Attitudes toward genomics and precision medicine

Journal of Clinical and Translational Science
DuBois, James M., Mozersky, Jessica, Antes, Alison, English, Tammy, Parsons, Meredith V., Baldwin, Kari

Grant Abstract

Exploring Choice of Law Challenges in Multi-Site Precision Medicine Research

Through the combined study of individual variation in genes, environment, and lifestyle, precision medicine research offers the potential for discoveries that will improve human health. Spurred by…

Publication

Precision medicine: Drowning in a regulatory soup?

Journal of Law and the Biosciences
Dianne Nicol, Tania Bubela, Don Chalmers, Jan Charbonneau, Christine Critchley, Joanne Dickinson, Jennifer Fleming, Alex W. Hewitt, Jane Kaye, Johnathon Liddicoat, Rebekah McWhirter, Margaret Otlowski, Nola M. Ries, Loane Skene, Cameron Stewart, Jennifer Wagner, Nik Zeps