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Publication
Perspectives on choice of law challenges in multistate precision medicine research
Journal of Law and the Biosciences
To explore the implications of the different laws governing research in each state for participant rights and protections, Beskow and colleagues interviewed experts in law, human research protections…
Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
A major challenge for precision medicine research is including historically under-represented groups in numbers sufficient to ensure statistically valid inferences of the influence of relevant risk…
- Behavioral
- Biomedical Research
- Categories
- Collection
- Communities
Video
ELSIcon2022 Flash: Communicating precision medicine research: multidisciplinary teams and diverse communities
ELSIcon2022 • Flash • May 31, 2022
Julie Beans
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Introduction: Precision medicine research investigates the differences in individuals’ genetics, environment, and lifestyle to tailor…
- Live
- Flash
- tools
- precision medicine
Research Tool
Influences on Precision Medicine Knowledge and Attitudes (Survey)
This survey asks participants to supply demographic information (including educational level, household income, and race), rate their familiarity with precision medicine terms, indicate their…
Publication
Increasing inclusivity in precision medicine research: Views of individuals who are deaf and hard of hearing
Genetics in Medicine
Garofalo and colleagues surveyed 267 deaf/hard of hearing individuals and found high levels of support for precision medicine research. Participant responses also revealed potentially overwhelming…
Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…
- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
Grant Abstract
The Ethics of Inclusion: Diversity in Precision Medicine Research
PROJECT NARRATIVE This study aims to analyze how diversity and inclusionary practices are conceptualized and operationalized by a range of stakeholders in precision medicine research in order to…
- Address
- Behavioral
- Biomedical Research
- Categories
- Collection
Video
Precision Medicine Research, ‘All of Us’, and Inclusion
A Discussion for Journalists • November 16, 2021
This is the third in a series "Genomics in Society: New Developments, New Questions: Discussions with Journalists" hosted by Hastings Center, in…
- All of Us
- precision medicine research
- inclusion
Grant Abstract
Integrating Ethics into Machine Learning for Precision Medicine
The overall goal of this project is to understand how to encourage and enable people who are developing artificial intelligence for personalized health care to be aware of values in their daily…
- Address
- Algorithms
- Artificial intelligence
- Awareness
- base