February 2025 EFF: Building Infrastructures to Enhance Community Engagement Work

This ELSI Friday Forum was co-hosted with The Broad Institute.

Community engagement is increasingly seen as a necessary component of genetic and genomic research. One major rationale for community engaged genetic research is to assure that benefits of research are aligned with community needs and goals. Assuring broad benefits also requires broad representation in genetic and genomic research participant populations. Organizations such as the American Society for Human Genetics have put forward guidance to advance community-engaged research, which was aimed at the scientific community. However, there are structural barriers to the advancement of community-engaged research that may require the action of institutions such as scientific journals, research funders, and academic research organizations. This session addressed the ways that structural and systemic factors can lower barriers to effective community engagement in genetic and genomic research.

Moderator: Heini Natri, PhD

Panelists: Ishita Das, PhD, PMP; Alycia Halladay, PhD; and Celia van der Merwe, PhD

See the resources for this session here.

Suggested Citation:

Das, I., Halladay, A., van der Merwe, C., & Natri, H. (2025 February 14). Building infrastructures to enhance community engagement work [Video]. The Center for ELSI Resources and Analysis (CERA). https://elsihub.org/video/february-2025-eff-building-infrastructures-enhance-community-engagement-work