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NIH Sep 22, 2021 | K99
Assessing Minor Children?s Readiness to Receive Genetic Information
Institution: MAYO CLINIC ROCHESTER
FOA Number: PA-20-188
Abstract
This project is designed to improve our understanding of when to best communicate parental genetic risk information to minor children by assessing the minor?s readiness to receive such information from the perspective of the parent and the minor child themselves. We will interview parent-child pairs who have already communicated about parental genetic risk information to richly characterize experiences with, perspectives on, and implications of the communication event(s). These data will inform elements of an empirically-based intervention to assist parents and providers with communicating with minor children about parental genetic information, and will ultimately help to inform current thinking and practices on communicating about parental genetic risk information to minor children.
FUNDING AGENCY:
Funder:
NIHInstitute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTEFunding Type:
K99Project Number:
K99HG012085Start Date:
Sep 22, 2021End Date:
Dec 17, 2021PROJECT TERMS:
Address, Adolescent, Adult, Affect, Attitude, base, Bioethics, Child, Child Development, child psychology, Childhood, Cognitive, cognitive capacity, Communication, comparative, Data, design, Development, developmental psychology, Distress, Elements, ethical legal social implication, Event, experience, Family member, Fright, Future, Genetic, genetic counselor, Genetic Diseases, genetic disorder diagnosis, genetic information, Genetic Risk, genetic testing, Genomics, Health, Health behavior, Health Professional, improved, Individual, insight, Institutes, International, Internet, Intervention, Interview, Knowledge, Lead, Learning, member, Minnesota, Minor, novel, Outcome, Outcomes Research, Parent-Child Relations, Parents, Perception, Policies, Positioning Attribute, Procedures, Process, Provider, psychosocial, Readiness, Reading, Research, Research Methodology, Risk, Siblings, Source, Structure, symposium, Test Result, Testing, therapy design, Thinking, Training, Trust, United States, Universities, Work
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