NIH Sep 12, 2019 | R01

Prenatal Preparation: Actions and Results

Principal Investigator(s): MICHIE, MARSHA MABRY;

Institution: CASE WESTERN RESERVE UNIVERSITY

FOA Number: PA-17-444

Abstract

PROJECT NARRATIVE Preparation is often cited as a reason for offering and for accepting prenatal genetic screening and diagnosis. However, this term has no clear definition, and thus it is impossible either to prove benefit or to recommend best practices. By assessing the perspectives of stakeholders in prenatal genetic testing and building a conceptual model of preparation, this project will inform clinical practice and policy recommendations for prenatal testing, pre- and post-test counseling, parental decision-making, and support for families who continue a pregnancy with a genetic condition.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R01

Project Number:
R01HG009668

Start Date:
Sep 12, 2019

End Date:
Jun 30, 2023

PROJECT TERMS:

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