Spotlight

Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group

Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…

Spotlight

A Bigger View: Ingrid Holm on Sharing Research Tools

CERA staff spoke with Ingrid A. Holm, MD, MPH, Professor of Pediatrics, Harvard Medical School, in April about two research instruments she deposited into the Research Tools Database on ELSIhub. Dr.…

Trainee Hub

TraineeHub Resources

This digital collection of ELSI-related resources is intended to provide useful information for ELSI trainees and early career scholars. If you would like submit a resource please email [email protected]

NIH Announcement

All of Us Research Program Releases Tribal Consultation Final Report

NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities 

Spotlight

The Sulston Project: Making the Knowledge Commons for Interpreting Inherited Cancer Risk More Effective

The Sulston Project is a joint research effort at Arizona State University and Baylor College of Medicine named after John Sulston, the champion of open science who, with Bob Waterston, crafted the…

Spotlight

Developing Resources for DNA Testing at the Border: BorderDNA Working Group

Emerging technological advances and political shifts have expanded immigration-related DNA applications beyond relationship tests within a family for visa petitions. Several U.S. government programs…

Spotlight

From Trainees to Scholars: Three ELSI Career Paths

ELSI scholarship is constantly evolving as new technologies raise new ethical challenges and questions. For younger scholars in the field, this presents ample opportunity to explore original topics…

ELSIhub Collections

ELSIhub Collections | Race, Genetics, and Genetics Education

Click here for all ELSIhub Collections Collection Editors Brian M. Donovan, PhD, Research Scientist, BSCS Science Learning Daphne O. Martschenko, PhD, Postdoctoral Research Fellow, Stanford Center…