Document Type
Survey
Title

Preferences Instrument for Genomic Secondary Results (PIGSR)

Authors:

Author Name(s)
Brothers, Kyle B.
East, Kelly M.
Kelley, Whitley V.
Wright, M. Frances
Westbrook, Matthew J.
Rich, Carla A.
Bowling, Kevein M.
Lose, Edward J.
Bebin, E. Martina
Simmons, Shirley
Myers, John A.
Barsh, Greg
Myers, Richard M.
Cooper, Greg M.
Pulley, Jill M.
Rothstein, Mark A.
Wright Clayton, Ellen

Year:

Year
2017

The PIGSR is a brief instrument that enables adult respondents the ability to express their preferences or opt out of getting secondary results. It is designed to be completed prior to testing without assistance. While initially developed for use in a study in which intellectual disability and related conditions were considered to be primary results, it possible to adapt the PIGSR to other genomic contexts.

Research Population:

Research Population
Adults

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