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Grant Abstract
Self-governance in the Human Genome Editing Era: Can Science Rise to the Challenge?
PROJECT NARRATIVE Human genome editing technologies are evolving rapidly and with this evolution brings questions regarding governance and the ethical implications involved in applying these…- Area
- base
- Basic Science
- Biological Sciences
- Case Study
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Grant Abstract
Ethical, Legal, Social, and Policy Implications of Workplace Genomic Testing
PROJECT NARRATIVE A number of US employers are offering their employees confidential workplace genomic testing (wGT), a service that could inform employees of their genetic risk for certain treatable…- Address
- Adult
- Area
- Attitude
- Automobile Driving
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Grant Abstract
Consumer Protections for Genomics and Precision Health
PROJECT NARRATIVE Consumer protections are of rising importance to the sustainability of personal genomics and mobile health industries and realization of precision health, yet the extent of consumer…- Accountability
- Address
- Adopted
- Advertising
- Affect
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Grant Abstract
Integration of multimodal cancer predisposition genetic counseling practices within the pediatric oncology setting
PROJECT NARRATIVE At least 15% of children with cancer have an underlying genetic cause of their cancer, requiring significant counseling regarding therapy modifications, cancer surveillance, and…- acceptability and feasibility
- Adolescent
- Adopted
- Affect
- Age
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Grant Abstract
Demographic Patterns of Eugenic Sterilization in Five U.S. States: Mixed Methods Investigation of Reproductive Control of the 'Unfit'
PROJECT NARRATIVE Between 1907 and the mid-1970s, 32 US states passed and implemented eugenic sterilization laws that authorized the sterilization of people considered unfit. Our epidemiological,…- Affect
- Age
- analytical method
- Asians
- Atrocities
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…- Address
- Attitude
- Belief
- Belmont Report
- benefit sharing
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Framework for Advances in Reprogenomics Ethics & Regulation (FAIRER)
PROJECT NARRATIVE Research in reproductive genomics is shifting, from diagnostics to interventions in the human genome, epigenome, and microbiome. But we lack ethical guidance about how to conduct…- Address
- Advocate
- Area
- Attention
- Bioethics Consultants
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Grant Abstract
Polygenic Embryo Screening: Towards Informed Decision-Making
PROJECT NARRATIVE Recent progress in complex trait genetics, coupled with the technical ability to generate accurate genome-wide genotypes from single-cell input, has made it possible to genetically…- Alleles
- Aneuploidy
- Assisted Reproductive Technology
- Attitude
- base