NIH Sep 1, 2021 | R21

Integration of multimodal cancer predisposition genetic counseling practices within the pediatric oncology setting

Principal Investigator(s): MACFARLAND, SUZANNE PATRICIA (contact), SCHWARTZ, LISA A;

Institution: CHILDREN'S HOSP OF PHILADELPHIA

FOA Number: RFA-HG-20-049

Abstract

PROJECT NARRATIVE At least 15% of children with cancer have an underlying genetic cause of their cancer, requiring significant counseling regarding therapy modifications, cancer surveillance, and lifestyle changes for both the patient and their family. There is a shortage of qualified genetic counselors available to meet with these families, especially in the stressful setting of cancer diagnosis. In this proposal, we will develop digital supports to expand the reach of genetic counselors, helping affected families to better understand testing and follow recommended guidelines that are shown to improve survival in patients predisposed to cancer.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
R21

Project Number:
R21HG011912

Start Date:
Sep 1, 2021

End Date:
Aug 31, 2023

PROJECT TERMS:

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