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Video
Indigenous Peoples & Genomics: Starting a Conversation
This video is linked to the publication: Indigenous Peoples and Genomics: Starting a Conversation Author Names Jenny Morgan Rachel R. Coe Rochelle Lesueur Ruth Kenny Roberta Price Nancy…- Indigenous Peoples
- Genomics
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Video
ELSI Friday Forum: Biobanking in the Era of COVID
Biobanking is a crucial element of the medical and public health response to COVID-19 and future pandemics, as the storage and distribution of biospecimens and data become a driver of current and…- Biobanking
- Covid genomics
- Biobank Ethics
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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice
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Video
ELSI Friday Forum: Structural Racism and Genomics in the Time of COVID
The 30th anniversary of the Human Genome Project comes at a moment of unprecedented international crisis. The coronavirus now accounts for over one million deaths worldwide and has ravaged…- structural racism
- ELSI Genomics
- Covid-19
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Video
ELSIhub Welcome Video
Welocme! a brief introduction and overview of ELSIhub and CERA.- Welcome overview
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Research Tool
CSER Phase 2 Follow Through on Medical Actions Attributable to Genomic Testing (MRA) Survey
The Follow Through on Medical Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, measures whether parents of… -
Research Tool
CSER Phase 2 Patient-Initiated Actions Attributable to Genomic Testing (PIA) Survey
The Patient-Initiated Actions Attributable to Genomic Testing Survey, developed by the Clinical Utility, Health Economics, and Policy (CUHEP) working group, asks adult patients to report whether they… -
Research Tool
The Personal Utility Scale (PrU)
The Patient Reported Utility (PRU) of Clinical Sequencing Survey asks participants to rate how useful they find nineteen outcomes of genome sequencing on a scale ranging from 1 (not at all useful) to… -
Research Tool
Health Care System Distrust Scale
Rose and colleagues developed a 10-item scale to measure distrust of the United States healthcare system (defined as hospitals, health insurance companies, and medical research) for use in the… -
Research Tool
SF-12 Health Survey
Ware and colleagues developed the SF-12, a shortened version of the 36-item short-form (SF-36) health survey, to measure physical and mental health in studies with large samples or constraints on…