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News
Creating and Sharing Animated Videos to Communicate ELSI Concepts: An Interview with Mildred Cho
In August, Mildred Cho, PhD, a long-time member of the ELSI scholarly community, and Professor in the Department of Pediatrics, Division of Medical Genetics and in the Department of Medicine at…- research tools
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Social Determinants of Participation in Genetic Research among Puerto Ricans and in the Puerto Rican Diaspora
Puerto Ricans are especially at risk of experiencing distributive injustice, or the structural exclusion from participating in genetic research that could potentially benefit them. Our existing…- Address
- Attitude
- Belief
- Belmont Report
- benefit sharing
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News
Request for Abstracts: ELSIcon2022
ELSIcon2022: Innovating for a Just and Equitable Future June 1-3, 2022 • Columbia University, New York, NY Research on the ethical, legal, and social implications (ELSI) of genetics research… -
Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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News
CERA Working Groups - Call for Proposals
The Center for ELSI Resources and Analysis (CERA) is an interdisciplinary center that connects scientists, scholars, policymakers, journalists and the general public with information about the…- working group
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News
Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice
The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…- genome informed consent
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News
NIH Requests Information on Developing Consent Language for Future Use of Data and Biospecimens
On July 1, 2021 the National Institutes of Health (NIH) announced a Request for Information (RFI) on the utility and useability of Consent for Data and Biospecimen Sharing for Future…- Consent
- data and biospecimens consent
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Grant Abstract
Framework for Advances in Reprogenomics Ethics & Regulation (FAIRER)
PROJECT NARRATIVE Research in reproductive genomics is shifting, from diagnostics to interventions in the human genome, epigenome, and microbiome. But we lack ethical guidance about how to conduct…- Address
- Advocate
- Area
- Attention
- Bioethics Consultants
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Grant Abstract
Polygenic Embryo Screening: Towards Informed Decision-Making
PROJECT NARRATIVE Recent progress in complex trait genetics, coupled with the technical ability to generate accurate genome-wide genotypes from single-cell input, has made it possible to genetically…- Alleles
- Aneuploidy
- Assisted Reproductive Technology
- Attitude
- base