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In the Media
‘All of Us’ reports half of the genomes it has sequenced are from non-Europeans
STAT News |Six years ago, the National Institutes of Health placed its biggest ever bet on precision medicine, launching a study to enroll over 1 million participants in an ambitious data-gathering…- All of Us Research Program
- Pangenome
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News
ELSI in Review • February 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2024 set explores ethical considerations for… -
In the Media
23andMe Breach Targeted Jewish and Chinese Customers, Lawsuit Says
The New York Times |The class-action suit said the genetic testing company failed to notify customers whose personal information was compiled into “curated” lists that were sold on the dark web.- 23andMe
- genetic data
- Biobanking and genomic databases
- breaches of confidentiality
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News
ELSI in Review • January 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2024 set explores experiences with genetic… -
News
ELSI in Review • December 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2023 set explores public perceptions of AI in… -
In the Media
U.K. approves world’s first CRISPR-based medicine, giving green light to therapy for sickle cell, thalassemia
Stat News |Regulators in the U.K. on Thursday approved a CRISPR-based medicine to treat both sickle cell disease and beta thalassemia, making it the world’s first therapy built on the revolutionary gene-editing…- CRISPR
- CRISPR gene therapy
- Sickle Cell
- Thalassemia
- gene therapy
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News
National Library of Medicine (NLM) Digitized Document Collection from USPHS Untreated Syphilis Study at Tuskegee
CERA is pleased to share the announcement that the NLM has digitized a collection of 3,000 documents related to the U.S. Public Health Service (USPHS) Untreated Syphilis Study at Tuskegee,… -
In the Media
Panel Says That Innovative Sickle Cell Cure Is Safe Enough for Patients
The New York Times |The decision by an advisory committee may lead to Food and Drug Administration approval of the first treatment for humans that uses the CRISPR gene-editing system- CRISPR
- Sickle Cell
- gene therapy
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News
ELSI in Review • November 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2023 set explores the ethics of risk prediction… -
News
TraineeHub: Mock Grant Reviews
"Mock Grant Reviews" took place on October 25, 2023. Some things are best learned by getting your hands dirty—and grantsmanship, including peer review of NIH grants, is one such thing. What…- grant applications
- Program Research Project Grants
- National Institutes of Health (NIH)
- Grant Scoring
- Peer Review