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In the Media
People of African ancestry are poorly represented in genetic studies. This effort will change that
The Los Angeles Times |Scientists are setting out to collect genetic material from 500,000 people of African ancestry to create what they believe will be the world’s largest database of genomic information from the…- Pangenome
- African genomics
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News
Navigating Consumer Protections for Genomics and Precision Health: An Interview with Jennifer K. Wagner and Abdulai I. Rashid
Despite their increasingly critical importance, consumer protections available from the Federal Trade Commission (FTC) and state Attorneys General related to the direct-to-consumer genomics and… -
News
ELSI Presentations at ASBH 2023
The following is a list of ELSI and ELSI-related sessions at ASBH 2023. Please email us at [email protected] if you would like to add your presentation. Thursday, October 12, 2023 ELSI Affinity… -
News
How Does Genetic Ancestry Testing Affect Perceptions of Race? Wendy Roth and Ariela Schachter Share Insights and Research Tools from New Study
Genetic Ancestry Testing (GAT) has rapidly grown in popularity. In 2022, an estimated one-in-five U.S. adults, approximately 50 million Americans, reported using a mail-in DNA testing service. As… -
News
ELSIcon2020 ELSIconversations
ELSIcon2020 ELSIconversations focused on presentations that were originally accepted for the canceled 2020 ELSI Congress. The 21 participants recorded 15-minute presentations of their… -
News
ELSI in Review • September 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2023 set explores ethical challenges associated… -
In the Media
Family of Henrietta Lacks Settles With Biotech Company That Used Her Cells
The New York Times |Ms. Lacks’s family had accused Thermo Fisher Scientific of profiting from her cells, which have contributed to revolutionary advances in medicine, without seeking their permission.- HeLa
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News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
News
ELSI in Review • August 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2023 set explores ethical implications of…