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News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
ELSIconversations ELSIcon2022 Series
This series included selected recordings from the 2022 ELSI Congress, grouped by topic into four one-hour discussion and networking sessions. The presentation authors briefly recapped their… -
News
ELSI in Review • August 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our August 2023 set explores ethical implications of… -
News
Introducing the Qualitative Data Sharing (QDS) Toolkit
We spoke with James M. DuBois, DSc, PhD, principal investigator of the QDS Project, about the new Qualitative Data Sharing (QDS) Toolkit. The QDS project team created the toolkit to support… -
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ELSI in Review • July 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our July 2023 set explores digital interventions for genomics… -
News
Announcing the 5th ELSI Congress Special Issue of the American Journal of Bioethics
We are pleased to announce the publication of a special issue of the American Journal of Bioethics. The 5th ELSI Congress issue includes five target articles, thirty-one open peer… -
News
Public Health Genomics Seeks Perspective Papers for Special Issue
Call for Perspective Papers Public Health Genomics is the first periodical to focus on rigorous research and evidence-based practice at the intersection of genomic discovery and public health.… -
News
ELSIconversations with the Ancestry and Diversity Working Group (ADWG) of ClinGen
The initial ADWG ELSIconversations were comprised of a series of three events on population descriptors (e.g., race, ethnicity, and/or ancestry) on clinical genetics laboratory requisition forms.… -
News
ELSI in Review • June 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our June 2023 set explores transparency in secondary use… -
News
Engaging Underrepresented Communities in Research
Attention to the unique inclusion and engagement needs of understudied populations is of critical importance to the advancement of genomic and precision medicine research, the elimination of health…