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Grant Abstract
Exploring Choice of Law Challenges in Multi-Site Precision Medicine Research
Through the combined study of individual variation in genes, environment, and lifestyle, precision medicine research offers the potential for discoveries that will improve human health. Spurred by…- Academic Medical Centers
- Accounting
- Address
- Agreement
- Attention
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
In 2010 the National Collegiate Athletic Association (NCAA) adopted a mandatory sickle cell trait (SCT) screening policy for student-athletes in its Division I (DI) colleges and universities.…- Adopted
- Affect
- African American student
- Area
- Athletic
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Area
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Grant Abstract
Genomics, Biometrics and Identity
Public Health Relevance Section Policies in the U.S. increasingly rely upon genomic information as a biometric to inform visa application processes, by verifying biological relationship claims or…- Advocate
- Affect
- Attention
- authority
- base
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Grant Abstract
The Stanford Training Program in ELSI Research
PUBLIC HEALTH RELEVANCE The proposed research training program at Stanford University is to create independent scholars who can conduct rigorous research on ethical, legal and social implications…- Research
- Training Programs
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
Project Narrative The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy?especially genomic results for adult-onset conditions…- Address
- Adolescent
- Adolescent Development
- Adult
- Affect
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Grant Abstract
FOSTERING INTEGRITY AND SOCIETAL IMPACT IN GENOMICS THROUGH MANAGEMENT AND LEADERSHIP PRACTICES
PUBLIC HEALTH RELEVANCE: Researchers engaged in conducting genetic and genomic science are significant players in advancing biomedical science and health care. Through their work, they are a vital…- Academic achievement
- Address
- Advisory Committees
- Affect
- Behavior
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Grant Abstract
Enhancing Diversity among Future ELSI Researchers
The proposed R25 Research Education Program is devoted to building a 15-month research mentorship program at the Johns Hopkins Berman Institute of Bioethics (BI) for students from diverse,…- Area
- Baltimore
- Bioethics
- career
- cohort
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Grant Abstract
Scalable tools to effectively translate genomic discoveries into the clinic
PROJECT NARRATIVE/ RELEVANCE OF PROJECT TO RESEARCH AND PUBLIC HEALTH Widespread utilization of genomic sequencing in medicine creates an urgent need to educate providers and patients. Currently,…- Address
- Area
- Attitude
- base
- Caring