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Grant Abstract
Unresolved Issues in Newborn Screening: Quantifying the Harms of a False Positive Result
While newborn screening (NBS) programs have saved the lives of thousands of children with inherited disorders, the future success of this vital public health program depends on the ability to…- adverse outcome
- Behavioral
- Bioethics
- Biometry
- Birth Order
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Grant Abstract
Research, Treatment and Informed Consent in Gene Therapy
This project is designed to analyze the adequacy of the Belmont Report's distinction between research and treatment as a basis for informed consent policy especially as it pertains to gene…- behavioral /social science research tag
- Clinical Research
- Decision Making
- gene therapy
- health care policy
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Grant Abstract
DNA Forensics Science: An Update--Supplement
In 1992, the NRC published 'DNA Technology in Forensic Science.' It was immediately recognized as the consensus of scientific opinion for determining the admissibility of DNA typing as… -
News
ELSI-related presentations at ASBH 2022
Please click link below to open entire schedule as a pdf file: Document ELSI talks at ASBH 2022.pdf (163.99 KB) Schedule Thursday – Oct 27th How… -
Publication
Ethics of routine: A critical analysis of the concept of ‘routinisation’ in prenatal screening
Journal of Medical Ethics -
Publication
Should whole genome sequencing be publicly funded for everyone as a matter of healthcare justice?
Cambridge University Press -
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Grant Abstract
Developing Evidence-Based Guidance for Engaging Rural Residents in the Deep South in Genomics Research: A Stakeholder-Driven Perspective
Narrative The diversification of genomics research cohorts is a national priority intended to accelerate research and improve individualized prevention, treatment and care. Concrete, tailored…- Accountability
- Alabama
- Attention
- behavioral sciences
- biobank
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Grant Abstract
Sharing Qualitative Research Data: Identifying and Addressing Ethical and Practical Barriers
Project Narrative This project will identify and reduce ethical and practical barriers to sharing qualitative research data. It will develop new resources to increase data sharing in an ethical…- Addiction
- Address
- Adoption
- Algorithms
- Attitude